Friends of ASCCA: Get to know Brandon!

My name is Brandon. I’m 22, and I’ll be 23 on January 23. I’m a sophomore at Miles College. I was born with a muscular disease called SMA ( Spinal Muscle Atrophy), and when I was born the doctor told my mom after I was diagnosed with my disease that she would only see me for the maximum of 2 years. Later down the road, I had a severe surgery to keep my spine in place. I was about 10 when this surgery happened. About 3 years later, my lungs collapsed, I flatlined at the hospital once in ICU, but only for a brief second.

After I turned 16, I realized I’m not normal as I began to listen to my mom tell me stories of how I talked in complete sentences at the age of 1 and how I told her both times she was pregnant and she didn’t even know. She thought I had just been picking up stuff from TV, but in reality, she really was pregnant both times. I’ve done this to a number of people. I also used to sit on my grandmother’s bed and talk. She’d ask who I was talking to and it would be her mother. She didn’t believe me until I started telling her things that only she knew.

Even though it’s a different battle everyday with me, sometimes I wake up and can’t feel my body. Sometimes I wake up and can’t breathe. Sometimes I wake up and don’t feel the same. I push through because I know God hasn’t given up on me, and I definitely will not give up on Him. I am a comedian, and I love to do comedy. I love to see people smile. It’s the key to the heart. I also have a documentary on me, and I am currently working on a book called P.O.P.: Power of Positivity.

Check out Brandon’s documentary on Facebook, and learn more about Brandon’s experiences at ASCCA on our Youtube page!

Guest Blogger Brandon

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